Outcome measures in adults living with SMA: standardization versus personalization

What will be discussed:

  • Outcome measures in adults living with SMA: what are our challenges?
  • Patient-reported and exploratory outcome measures in adults living with SMA: where do we want to go?

Valeria Sansone

Director of Neuromuscular
Omnicentre (NEMO)
Milan, Italy

Emma Ciafaloni

Professor of neurology and pediatrics
University of Rochester
Medical Center
Rochester, NY, USA

Biogen-66204

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